Hello family and friends,
Later on today, we will post information about yesterday's ultrasound and today's echo cardiogram. On Thursday we will have the results of possible Trisomy 13 or 18 and maybe the results of the MRI. The full amniocentesis results will not come back for 2 weeks. If you find that these details might be hard for you to read, we suggest that you do not come back to this blog site for now. We understand.
To place things in perspective, let us explain a few things. Bryce has multiple factors wrong with him. These include cleft lips, kidney stress/lack of proper function, and an incorrectly developed diaphragm that subsequently causes other organs to place pressure on his heart. Even if he was eligible for the in utero surgery to fix his diaphragm, the prognosis is grim. We are currently doing the requisite tests to determine if Bryce is eligible for this risky surgery. Without surgery Bryce's lungs will not be able to develop. To be honest, we just could not make any decisions yesterday. After a hard night's rest, today might be different.
Currently Dianna is not in medical danger, this could change as the pregnancy progresses into the third trimester. We are at week 20 now. This is a factor in our decision.
We are receiving the best possible medical care at Stanford. Yesterday's results were confirmed by 4 individual doctors and additional medical personnel.
The majority of the test results will be conclusive by this Friday. We will keep you informed.
All our love,
Dianna, Zane, Bryce and Gus
3 comments:
Dear Dianna and Gusti, and Zane and El~
You are all in our thoughts and prayers. We love you very much. Cousin Linda and Evan
My heart breaks with this news. I love you all so much and I am so so sorry that you are having to go through this pain. I am in constant prayer for you and baby Bryce.
Dear Gusti and Dianna, and Little Zane, I was just shocked when Linda told me about your Bryce. I will keep you all in my prayers and thoughts. It doesn't sound like you have such an easy road ahead, and in a way, I walked a similar road myself 9 years ago. Big hugs to all of you! Lots of Love from Cousin Shari, Clara-Grace, Ingeborg-Nuki and Roger
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